Love is who we are and no season can contain it…

Our family is having a low key Christmas this year.  We are staying home.

For the first time in awhile, when December rolled around I wasn’t filling notepads with lists titled “Gifts,”  “Meds and Feeding,” and “Sensory Needs.”  I didn’t have to run to Walgreens three times last week to refill prescriptions that always seem to run out if I even think about taking Eliza past the state line.  I didn’t have to cram our Christmas magic in the back of the car around the wheelchair, feeding supplies, sensory toys, and our very patient, long suffering dog, Rosie.  We did not drive 18 hours this year.  Hallelujah, amen, and cue the choir.

And, still, I’m beat.  I wonder if you are too.

This week, I heard the song, “Love is Christmas” by Sara Bareilles for the first time.  This song just spoke to me.   I was compelled to stop and listen.  The lyrics felt like better written versions of my own thoughts.  Nicely played, Sara Bareilles.  It was a poignant reminder of what my priorities are. Stains on the carpet do not even make the list.

Love is who we are, and no season can contain it.  This brought to mind all of the parents of children with special needs who make holiday magic happen on top of the other daily responsibilities that don’t go away just because “it’s the most wonderful time of the year.”

Love is how we do, let no judgment overrule it.  You know how much effort goes into caring for, researching, advocating for the children who love us and who lead us to be the best parents we can be.

Love is who we are.  Yes, I think that sums it up nicely.

If you are feeling worn down this holiday season, I offer you “Love is Christmas” from one mom to another.  Sorry about the ads.  Totally worth waiting those extra 5 seconds.

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AND, if you are looking for something to watch during all of your down time in the next week (Ahahahahaha!  Whew, that was a good one.), may I suggest this video?

I still have a lot to learn about CVI.  So much information about CVI has to be pieced together like a puzzle for each individual child.  Every child is different. Every manifestation of CVI is unique to each child.

I always find Dr. Dutton’s presentations very educational.  It is good information to pass on to an early intervention or an education team.

Toward the end, he emphasizes the importance of being “radio parents.”  I had never heard this term before, but it made a lot of sense.

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From one mom to another, I wish you and your family love and joy this holiday season and into the new year.  

 

 

 

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CVI Momifesto

CVIMomifesto is a blog dedicated to parent advocacy and community for families of children with Cortical Visual Impairment.

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